Another visit to Shriners Hospital in Greenville, SC has come and gone. In terms of follow-ups, this one proved to be a rather mundane visit on the HG scale. We started off with a quick visit over to POPS (Pediatric Orthotic and Prosthetic Services) and with Mr. Phil to pick up new AFOs, which were …
Words are a funny thing. They can be powerful, hurtful, funny, telling, or emotional. We use them to communicate. To tell stories or pass along information, thoughts, or feelings. Sayings such as “the pen is mightier than the sword” bring to light the power words can have. With all that power, how often can we …
The Importance of Words – Replacing Normal with Typical Read More »
Today makes four months for Mr. HG. I wish I could say that these monthly posts just come naturally, but I can’t. It seems like with each passing month, these get harder to write, not because there is a lack of things to cover, but because the “angle” or the focus of the post is …
Jenna likes to make fun of me sometimes, saying I’m the long-winded one with posts, it’s partially why I created this blog. I tend the write more than a Facebook or Instagram post will allow. Especially when the words come. Sometimes it’s not always easy to turn that facet off. Well, yesterday, this typically long-winded …
Today is AMC Awareness Day. It’s a curious thing, having a child with a condition that has a day that is dedicated to its awareness. What’s even more curious, is your child having a condition that is rare enough that the day dedicated to its awareness was only declared 12 years ago, and currently lacks national recognition. …
I admit openly that before HG, I never considered the possibility that I’d ever be a special needs dad. I’m not sure if that came from selfishness, naivety, or a combination of the two. Fact is, it never crossed my mind. It was never a “what if?” scenario. It’s fair to say I was painfully unprepared for this role and in ways still be underplaying …
The New Sleep Setup It’s fair to say that we were a little nervous going into our first follow-up appointment to Greenville Shriners Hospital, after receiving the AFOs 5 weeks ago. Thankfully, Dr. Hyer said HG’s feet look great, with no sign of regression! We also found out that our growing boy is close to …
It has been five weeks since we were last at Greenville Shriners Hospital. Five long weeks. To most, having five weeks off from having doctor’s appointments would sound great. Especially when you consider how many appointments and visits we’ve made in the past 3 months. Initially, five weeks ago, we thought so anyway. Having a …
See the Ability, Not the Disability Our local hospital, Rockcastle Regional, held a new event today. One I’m hoping can grow and become a yearly event; The Ability Walk. We had a great (but very hot) time. This was one of the first times we’ve been out locally in public with HG. I’m happy we …
I had no idea 15 weeks ago. I did not know what AMC was, or that it had an awareness day. Today we received our package of all our AMC Awareness goodies. T-shirts, wrist bands, decals, temporary tattoos, and stickers. We’re decked out for our first AMC Awareness Day. It a curious thing, having a …
Today marks 3 months. (So you know I have to do my monthly post!) We are officially a quarter of the way through year 1. I wish I could say it has been an easy and joyous 3 months. That it’s been all smiles and happiness, just soaking in our new baby boy. I can …
Today is World Clubfoot Day which takes place on the birthday of Dr. Ignacio Ponseti, pioneer of the Ponseti method for clubfoot. As previously documented, HG began the Ponseti method when he was 2 weeks old. He went through a series of gentle manipulations of the foot/ankle and weekly serial casting. After four casts Dr. …
