The New Sleep Setup It’s fair to say that we were a little nervous going into our first follow-up appointment to Greenville Shriners Hospital, after receiving the AFOs 5 weeks ago. Thankfully, Dr. Hyer said HG’s feet look great, with no sign of regression! We also found out that our growing boy is close to …
It has been five weeks since we were last at Greenville Shriners Hospital. Five long weeks. To most, having five weeks off from having doctor’s appointments would sound great. Especially when you consider how many appointments and visits we’ve made in the past 3 months. Initially, five weeks ago, we thought so anyway. Having a …
See the Ability, Not the Disability Our local hospital, Rockcastle Regional, held a new event today. One I’m hoping can grow and become a yearly event; The Ability Walk. We had a great (but very hot) time. This was one of the first times we’ve been out locally in public with HG. I’m happy we …
I had no idea 15 weeks ago. I did not know what AMC was, or that it had an awareness day. Today we received our package of all our AMC Awareness goodies. T-shirts, wrist bands, decals, temporary tattoos, and stickers. We’re decked out for our first AMC Awareness Day. It a curious thing, having a …
Today marks 3 months. (So you know I have to do my monthly post!) We are officially a quarter of the way through year 1. I wish I could say it has been an easy and joyous 3 months. That it’s been all smiles and happiness, just soaking in our new baby boy. I can …
Today is World Clubfoot Day which takes place on the birthday of Dr. Ignacio Ponseti, pioneer of the Ponseti method for clubfoot. As previously documented, HG began the Ponseti method when he was 2 weeks old. He went through a series of gentle manipulations of the foot/ankle and weekly serial casting. After four casts Dr. …
I’ve probably started and stopped this post a half dozen times already. Well before sharing the blog publicly. It’s just one of those subjects that is not only hard to cover but is so broad, it’s hard to know what scope to cover in a singular blog post. We’ll just start like this: as of …
We have had many milestones with HG in these last 11-plus weeks. First casts, last casts. First splints, first AFOs, and first arms movements. With all those milestones, unique to HG, it’s nice to have a milestone that a bit more generic and common: shots. Yes, HG has had his first round of shots! A …
We’re entering summertime, which means pool time! My brother-in-law recently opened his pool up for the season, and like any good nephew, HG tried it out as soon as he could! Thankfully HG is proving to be quite the water dog! We plan on incorporating some aqua therapy down the road, and his apparent love …
Who knew wrinkles would be such a welcomed sight?! Wrinkles that we all have, that you never think about, like on your elbows, fingers, wrists, and knees, HG has never had. HG has been missing wrinkles on most of his joints because of a lack of movement within the womb. That movement gives us these …
It’s crazy to think that it took us over 10 weeks for HG to have his first official baths, but we’ve finally made it! We obviously couldn’t give our little guy a bath for the first two weeks because of his umbilical cord, but since he turned 2 weeks old, we’ve been dealing with casts. …
Time is a funny thing. It can feel like it zooms by or crawls for us at moments of joy or stress. Despite how it feels like time can completely stop at times, it’s always moving forward. Always. It is always there. A constant presence. It is the one process in the universe that cannot …
