September has been a busy month, as we just made our third trip to Shriners Children’s Greenville this month. Similar to our last visit, this latest, impromptu visit came with a few firsts. Such as…
The Next Step Forward with an Eye Gaze Device
As parents, we’re conditioned to expect and anticipate certain milestones from our children. We eagerly anticipate their first words, the sweet “mama” and “dada”. Those wobbly first steps towards independence. Harrison has and continues to…
Greene Does Greenville: Red Leg Casts
Faster than we might have anticipated, we found ourselves embarking on our 21st journey to Greenville Shriners. The rushed timing, while unexpected, didn’t affect our usual cocktail of stress, determination, and optimism If I were…
Greene Does Greenville: The Next Milestone
Our 20th visit to Shriners Children’s Greenville is in the books. Twenty trips, of varying degrees of stress or relief. Over 11,000 miles, all driven towards the next step, the next milestone. Our 20th trip…
Reflecting on AMC Awareness Day (and Month) 2023
I wrote a post last year, after AMC Awareness Day had passed, reflecting back on it, and comparing it to our first AMC Awareness Day. I actually had full intentions of doing the same this…
A Moment of Reflection
Grief and guilt are strange beasts. As a father to a disabled son, I’m still learning the ropes, but have realized you can never anticipate, you can never prepare for when it hits. Perfect example;…
AMC Awareness Day 2023!
Yes, I know; I’m a few days late on this post. AMC Awareness Day was June 30th, and today is July 2nd. What can I say? I’ve been busy! Yes, I could have prewritten a…
Shriners Children’s Lexington Hospital – Strike 3
I am not one to say negative things about a place or people, especially one such as a children’s hospital, but after experiencing the treatment we’ve received at Greenville Shriners and the high bar that…
Greene Does Greenville: Hero in TWO Half Shells
Another 24-hour Greenville there and back trip is in the books. Harrison’s tricky upper curve is giving Dr. Pete a run for his money. We came away with two braces to try out over the…
Everything is a Process, Even Shopping
Things take time, and no two children are on the same path. It is something I SHOULD remember, but I’m constantly having to remind myself of this. For the past 2 years, shopping with Harrison…
Greene Does Greenville: The Boy Who Makes No Sense
If someone were to come up and ask me what’s the one lesson I’ve learned in the past two years that rises above all others, my answer would be simple: not to get ahead of…
Mehta Casting: Epologue
Thus the final Mehta cast is off!! We started this chapter nearly 250 days ago. Unknowing at the time if we’d be going through 6 weeks of casting, six months of casting, or more. All…
